Should companies be allowed to demand your genetic test results? – THV11.com

CBS , WTSP 6:26 AM. CDT March 21, 2017

A bill from a North Carolinarepresentative would allow companies to ask employees for genetic information. William Thomas Cain/Getty Images (Photo: William Thomas Cain, 2006 Getty Images)

Your genetic profile can reveal whether you have a disease or a predisposition to problems like cancer. So there is concern over a bill that would let companies request genetic testing, and effectively charge employees more for health insurance if they refuse.

The bill aims to clarify rules for workplace wellness programs. Employers would be able to offer discounts of up to 30 percent to those who participate. For the average family of four, that could be a difference of more than $1,500 a year.

But critics of this new bill say theres no telling how companies could use that information in the future. To them, its a choice between losing privacy or losing what could be thousands of dollars in savings.

Joselin Linder told correspondent Tony Dokoupil that, most of the time, she doesnt mind discussing the genetic illness that runs through her family attacking a vein in the liver.

So my grandmother passed it to two sons and watched two sons die of this gene, she said.

But she wouldnt want a boss to know the details of her family tree.

Dokoupila asked, How do you think you would feel if an employer said, We want to see your genetic test or were going to charge you 30% more for health insurance?

I think it would feel like a penalty, she replied.

What Linder calls a penalty, North Carolina congresswoman Virginia Foxx sees as motivation. She introduced a bill that would allow companies to offer insurance premium discounts to workers who undergo genetic testing as part of a workplace wellness program.

If they dont participate in the wellness program, their premium is going to be the same as everyone else, Foxx said.

With the exception of the people who participate in the program, said Dokoupil.

Well, its an incentive to participate in the program, Foxx replied.

Nancy Cox, president of the American Society of Human Genetics, countered, Its hard to imagine a good reason for wanting this information.

In a letter to Congress, her organization (and dozens of others) said the bill would impose draconian penalties on employees.

Federal law bans companies from using genetic information to hire, fire or discriminate. But critics say a simple blood or saliva test could eventually reveal so much about a persons health and abilities that the urge to peek might be irresistible.

There are possibilities for misusing genetic information that make it very important for this information to be private, Cox said.

When asked about the opposition to her bill, Rep. Foxx said, We are totally surprised.

She points to the benefits of companies engaging in workers health: It will save people money, and it also will help them achieve a better quality of life.

Most large companies offerwellness programs, which are supposed to encourage healthy living, prevent disease, and lower health costs.

But Joselin Linder doesnt think shed ever join one if it meant handing over her genetic information. I think all of us deserve our privacy, Linder said, and I think all of us deserve healthcare.

The Kaiser Family Foundation reports theres little evidence so far that wellness programs actually improve workers health.

Foxxs bill passed a House committee this month, and she is is optimistic about its chances of becoming law.

But with opposition mounting, it could be a tough sell in the Senate.

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Should companies be allowed to demand your genetic test results? - THV11.com