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Category Archives: Transhuman News

Promise of precision medicine depends on overcoming big obstacles – Healthcare IT News

Posted: June 1, 2017 at 10:12 pm

Paul Cerrato says he first started researching precision medicine almost 30 years ago.

"Back then it wasn't called precision medicine, but when I was in graduate school I did my final master's thesis on 'biochemical individuality' that was the buzzword," said Cerrato, a healthcare journalist. "That was the beginnings of the thinking about personalizing care: trying to understand how each human body is different before they can figure out how to treat individuals."

Fast forward three decades and the excitement around precision medicine seems to finallybe at a tipping point thanks to maturing technology, more cost-effective gene sequencing and momentum-building federal projects such as the Precision Medicine Initiative and the Cancer Moonshot.

[Also:How Penn Medicine primed its IT infrastructure for precision medicine]

But the obstacles are also substantial from the high cost of drugs for precision oncology, lack of widespread interoperability, skepticism on the part of some clinicians and challenges related to patient engagement.

At the Healthcare IT News Precision Medicine Summit in Boston on June 12, Cerrato, along with Beth Israel Deaconess Medical Center CIO John Halamka, MD, will discuss the obstacles and opportunities facing personalized medicine.

Halamka knows well about the opportunities. And not just because he's a renowned expert on health information technology. His wife, Kathy, was successfully treated for breast cancer with help from some sophisticated precision medicine tools and techniques.

Cerrato and Halamka just finished a book together, Realizing the Promise of Precision Medicine, due to be published by Elsevier in October. In it, they offer some insights into Kathy's treatment, but focus more generally on the transformative potential of personalized care, exploring the role of electronic health records, patient-facing mobile apps, health information exchange and more.

They're hopeful about the future. But cognizant that some substantial hurdles will need to be overcome along the way.

"When we were researching the book there was a lot of positive data, but also quite a bit of skepticism, and criticism of the whole concept that precision medicine should have such an important role in patient care," said Cerrato.

One of the central goals of their book, and their talk in Boston this month, is to counter the misapprehension of many clinicians that precision medicine has limited applications in the real-world care settings.

For instance, he said, many physicians argue: "'Personalized medicine? We already do that. We don't need to spend another $200 or $300 million on a precision medicine initiative because we already provide personalized care on a daily basis.'

"Of course, the answer to that is, that's personalized care with a lower-case P," said Cerrato. "We're talking about something much more sophisticated and much more involved: genomics and microbiome and lots of other risk factors. The average doc might be personalizing medicine by switching from one antibiotic to another, or asking patients if they have liver disease before they decide to use a statin, or those kinds of things. That's personalization, but those are the baby steps."

Another objection has less to do with changing culture and mindset and more to do with financial realities, he said. And this one in the near term, at least has some merit.

"The second obstacle we're dealing with is the objection of some thought leaders in clinical medicine that precision medicine will simply cost too much," said Cerrato. "There's some substance to that objection. You look at the cost of precision medicine drugs that have been coming out the past couple years they're really astronomical. And the return on investment, very often, is limited, especially in cancer care," where hugely expensive drugs are sometimes only able to prolong life for a few months or a year.

"It's a work in progress," he said. "We don't have a simple answer to that. But we've got to put it out there. One of the reasons we want to give a presentation like this and write a book like this is we want to convince docs in the trenches, and thought leaders in clinical care, that precision medicine really is a model they should be following. In order to do that, we really should be up front about their criticisms. We have to address them directly."

Another common concern is that "physicians' workloads would be greatly increased if they had to start practicing precision medicine on a daily basis," said Cerrato. "You're talking about mountains and mountains of information. How do you translate that so a physician who only has 15 minutes with a patient can use that in daily care?"

Again, not an unreasonable point to make. Gene sequencing is still pretty expensive, too. But even if it cost a dollar, the average primary care physician does not know how to interpret genomic data."

Technology also poses big challenges, especially while interoperability remains elusive. "Without interoperability, precision medicine is really not going to get too far."

EHRs too are lagging badly in their ability to handle data-intensive genomics. "Right now we're not at the stage where a physician can just open up his electronic health record and say 'OK, what does this patient's gene sequencing look like?' We're not there yet."

But there are big reasons for optimism, too. As Halamka said, Kathy's treatment benefited greatly from technologies such as Clinical Query 2, software at Beth Israel Deaconess that allows physicians to see anonymized health records of cohorts of patients, tailored by different demographic and clinical parameters.

"It looks at all the patients who have had similar signs and symptoms and lab values and shows what were the treatment recommendations for those patients," said Cerrato. "It allowed the oncology team to individualize the care for Kathy so it would meet her needs, while eliminating the possibility of her getting treated with a protocol that would do more harm than good."

Most precision medicine and genomics work is still being done at advanced academic medical centers such as BIDMC, of course.

But on a smaller scale, there's still big promise for other types of personalized treatments.

"There are certain aspects of the field that are already happening right now. Especially in the field of diabetes, there's enough out there in terms of mobile apps and other digital tools, that is allowing physicians who are interested to practice precision medicine today," said Cerrato.

"Scripps has come out with an app for asthmatics, and it does a lot of the heavy lifting for clinicians by allowing patents to put in some basic parameters about their peak flow readings and their medication use and a few other things," he added. "When a doc uses that for the asthmatic patient, they don't have to do all the work. The technology of the app will do it for them. It has built-in decision trees to help them make better decisions on a personalized basis."

The bottom line, said Cerrato, is that there are some aspects of precision medicine that are working for some docs now and there are some aspects that remain in the future either because they're not educated enough to know how to do it, or the clinical data is not there yet."

How long it takes for genomics and personalized treatments to become commonplace still depends on the answers to a host of clinical, financial, technological and cultural questions, he said, but "I do think it will be the standard of care in the future."

Twitter:@MikeMiliardHITN Email the writer: mike.miliard@himssmedia.com

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Promise of precision medicine depends on overcoming big obstacles - Healthcare IT News

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Here’s Why Editas Medicine Fell as Much as 15.7% Today – Motley Fool

Posted: at 10:12 pm

What happened

Shares of gene editing pioneer Editas Medicine (NASDAQ:EDIT) dropped nearly 16% today after a new study published in Nature Methods drew attention to unintended effects of using the highly touted genetic engineering tool known as CRISPR. Shares of genome-editing peers CRISPR Therapeutics (NASDAQ:CRSP) and Intellia Therapeutics (NASDAQ:NTLA) were down as much as 6.9% and 14.9%, respectively, on the news.

The study, conducted by a team from Columbia University Medical Center, provided data showing that the technology can "introduce hundreds of unintended mutations into the genome," according to Genetic Engineering & Biotechnology News. That contradicts one of the better-known characteristics of CRISPR: precision.

Simply put, it's not sitting well with investors, who are (in knee-jerk fashion) adjusting the value placed on early-stage platforms, especially Editas Medicine, which will be the first of the group to enter clinical trials. As of 3:31 p.m. EDT, the stock had settled to a 11.3% loss.

Image source: Getty Images.

The study is among the first to quantify the specificity of CRISPR tools, which work by delivering gene editing enzymes to specific parts of the genome through the use of synthetic guide RNAs. Or that's how they're supposed to work. The authors of the study show that although intended edits can be made with respectable efficiency, such as correcting a mutation in a gene that causes blindness in mice, there are also unintended secondary edits made to the genome.

This may seem like a bombshell report, but it's a matter of optics. Researchers have never shied away from the reality that CRISPR gene editing tools can stray off target and make unintended edits to genomes in mammalian cells (i.e., humans). Many labs -- including Editas Medicine, CRISPR Therapeutics, and Intellia Therapeutics -- are working on increasing the efficiency and specificity of the technology. This is how science works. By quantifying these off-target mutations, which the paper attempted to do, researchers can begin to better understand how to improve the technology.

Investors and traders did not take the same cool-headed approach to the news, instead giving into a knee-jerk reaction to adjust the value of each pre-clinical technology platform. While off-target edits could prove troublesome for a CRISPR therapeutic used in humans, it's important to remember that there are currently no clinical trials underway in the United States. Editas Medicine will become the first to initiate a clinical trial later this year.

The sharp contrasts in reactions from researchers and investors is likely driven by how CRISPR is perceived by the media. Unfortunately, there is a generous amount of hyped-up science journalism that sticks to simple narratives -- "CRISPR has arrived and will cure all diseases!" -- instead of more nuanced takes that give equal weight to each current obstacles and future potential facing an emerging technology. Just remember: Biology is never quite so simple.

The results from the study don't really change anything, except for bringing more attention to the already existent clinical risk inherent to the development of early-stage CRISPR therapeutics. There is still plenty of work and new technology left to be developed before gene editing fulfills its promise in treating and curing human diseases. Hopefully, this can be a long-term positive for investors in CRISPR stocks by forcing them to listen to the fundamental hurdles for the technology. Hopefully.

Maxx Chatsko has no position in any stocks mentioned. The Motley Fool has no position in any of the stocks mentioned. The Motley Fool has a disclosure policy.

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A World First CRISPR Trial Will Edit Genes Inside the Human Body – Futurism

Posted: at 10:12 pm

In Brief The CRISPR process will be used inside the human body for the first time on July 15th to combat HPV, which impacts millions of people worldwide. And this is just one of a huge amount of proposed CRISPR studies occurring soon. Uninvasive CRISPR

A new CRISPR trial, which hopes to eliminate thehuman papillomavirus (HPV), is set to be the first to attempt to use thetechnique inside the human body. In the non-invasive treatment, scientists will apply a gel that carries the necessary DNA coding for the CRISPR machinery to the cervixes of 60 women between the ages of 18 and 50. The team aims to disable the tumor growth mechanism in HPV cells.

The trial stands in contradistinction to the usual CRISPR method of extracting cells and re-injecting them into the affected area; although it will still use the Cas9 enzyme (which acts as a pair of molecular scissors) and guiding RNA that is typical of the process.

20 trials are set to begin in the rest of 2017 and early 2018. Most of the research will occur in China, and will focus on disabling cancers PD-1 gene that fools the human immune system into not attacking the cells. Different trials are focusing on different types of cancer including breast, bladder, esophageal, kidney, and prostate cancers.

The study, if it succeeds, will be promising for sufferers of HPV and act as a milestone in the CRISPR process. Although HPV is not necessarily cancerous, it cancause cervical cancer. In the U.S. alone, there are more than 3 million new infections every year.Although there is a vaccine for the virus, currently, once you have it you can never get rid of it.

More generally, the CRISPR process could be nothing short of a miracle: if it passes all medical tests it wouldnt just make medicine a whole new kettle of fish, it would reinvent the kettleand the fish, for almost any field. It is cheaper than other gene editing therapies, and could potentially save millions of lives by curing diseases we can only deal with therapeutically like cancer, diabetes and cystic-fibrosis. Crops could be altered more effectively using the process. Drugs and materials that were never possible before could be pioneered.

However, it is still extremely nascent technology, and many fear that there could also be a host of unexpected consequences. Recently, it has been found that it causes hundreds of unexpected mutations in DNA. While these concerns are valid, more research is necessary. Which is why the upcoming studies over the next few years are so vital to the future of our health.

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Express Yourself With These Politically Incorrect Crayons – Big Think (blog)

Posted: at 10:11 pm

Want The Right Answer Online? Dont Ask Questions, Just Post It Wrong

Microsoft Plans to Have a DNA-Based Computer by 2020

A New Study Suggests A Lack of Sleep Makes Your Brain Eat Itself

Politically incorrect crayons for adult coloring books. (Image: Kickstarter)

Adult coloring books have certainly risen in popularity in the past few years, with sales in the U.S. reaching 14 million books in 2016. Psychologists and therapists even prescribe them to patients as calming tools and citeadditional benefits like enhancing focus and concentration, helping with problem solving and organizational skills.

Now, a pair ofKickstarter enthusiasts, want to make coloring even more fun for you by merging Cards Against Humanity with the 'boring' crayon to make it... politically incorrect. The offensive crayons come in much more interesting colors than regular crayons, such as Privilege White, Boner Pill Blue, Miscarriage Maroon, and Travel Ban Brown - all to help you "bring life to your pages."

The way we see it, Offensive Crayons remind us that political correctness and the way we see the world (and choose to color it) is entirely subjective. As neuroscientist Beau Lotto explains - we don't see the world as it is, we see the world that helps us to live, because our sensory organs interpret inherently meaningless" data in ways that are useful for our survival. Color is a great example of this.

what-happens-in-the-drunk-tank

In addition, we don't underestimate the special power of special colors. Just ask psychologist Adam Atler who wrote a whole book about one of them Drunk Tank Pink. As it turns out Drunk Tank Pink is a special shade of pink, that a group of psychologists in the 60s discovered to have calming effects on aggressive students and also to improve their engagement in class. Similar effects were observed when this shade of pink was introduced to a prison and used to paint the cell that kept the most aggressive prisoners.

beau-lotto-do-our-senses-reveal-the-world-or-do-they-obscure-it

So, go ahead and express your unique individuality, with a sense of humor, whether through "Drunken racist uncle purple? or "Ho ho home invasion red?" no one else sees the world just like you.

--

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Lets’ stop misusing the term ‘politically incorrect’ – The Telegraph (blog)

Posted: at 10:11 pm


The Telegraph (blog)
Lets' stop misusing the term 'politically incorrect'
The Telegraph (blog)
But it has been used so often and in so many different situations that being politically incorrect has become a free pass for people to say anything offensive at any time and place regardless of whether or not what they say has a point to it or in ...

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Wikipedia Seems to Be Winning Its Battle Against Government Censorship – Slate Magazine (blog)

Posted: at 10:11 pm

Wikipedia has made it much harder for governments to block access to individual articles.

AFP/Getty Images

In Iranas you might expectinternet content about womens rights, sex, and religion are censored and filtered. Wikipedia articles on the topic used to be blocked. But in 2015, people in Iran were suddenly able to access Wikipedia posts that were previously censoredall because Wikipedia made a simple switch.

Wikipedia used to operate under both HTTP or HTTPS. With HTTPS, the information in your browser is encrypted. People can see what site youre on, but not which specific page of that site when you use HTTPS. For example, someone eavesdropping on the network could see that youre on Facebook, but not which ex from high school youre looking at.

So if a country didnt want you looking at, say, the Wikipedia page about Tiananmen Square, it could just block that single article. That is, until the Wikimedia Foundation switched over to being completely HTTPS in 2015. Now, if a nation wants to stop its citizens from reading some Wikipedia pages, it has to block the entire site. Without encryption, governments can more easily surveil sensitive information, creating a chilling effect, and deterring participation, or in extreme cases they can isolate or discipline citizens, the Wikimedia Foundation said in a statement back in 2015.

In May, the Berkman Klein Center for Internet and Society at Harvard released a study on the effects of the Wikimedia Foundations switch to HTTPS-only. For the most part, according to the report, it has been positive for the fight against censorship. Wikipedia has repeatedly found itself the target of government censors, the authors of the study wrote. But the sites efforts seem to be working. Our research suggests that on balance, there is less censorship happening now than before the transition to HTTPS-only content delivery in June 2015. This initial data suggests the decision to shift to HTTPS has been a good one in terms of ensuring accessibility to knowledge, the study says.

To conduct the study, the Berkman Center used both client-side data and server-side data. Client data comes from the perspective of users around the globe, and server data deals with traffic coming in to Wikimedia servers.

The researchers focused on 15 different countries that had histories of either specifically blocking Wikipedia or general internet censorship. The study found that the primary countries that are censoring Wikipedia at least somewhat are China, Thailand, and Uzbekistan.

The Chinese-language Wikipedia project began in May 2001. Its first brush with censorship came in 2004, when the government blocked the project during the anniversary of the Tiananmen Square protests. Currently, the entire Chinese Wikipedia site is blocked. Chinas government its own official digital encyclopedia in 2018. A digitized version of the print version that has been around since the 1970s, it will contain 300,000-plus entries made by more than 20,000 scholars.

China is an extreme case, but other countries have dabbled in Wikipedia blockage, too. While states in America have begun to legalize marijuana, Russia still has a problem allowing its citizens to merely look at articles on the subject. Roskomnadzor, the federal agency that supervises electronic media in Russia, blocked all of Russian Wikipedia, aka ru.wikipedia.org, in August 2015 after Wikipedia editors refused to remove an article about cannabis. Because this happened after the switch to HTTPS, the government had to block all access to Wikipedia, instead of just the page. However, the site was restored a few hours later after Roskomnadzor said the article met its standards after being edited, even though Wikipedia editors claimed the article hadnt been changed.

The study concludes that while Russias internet censorship at large continues to grow, the government has not been interfering with Wikipedia. Clients based in Russia were able to access Wikipedia and its subdomains, and the network request round trip was the fastest out of all the countries in the study.

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KYRGYZSTAN: Religious censorship, sharing faiths ban? – Forum 18

Posted: at 10:11 pm

All religious literature would be subject to censorship, sharing beliefs would be banned, adults wanting to study faith abroad would have to notify Religious Affairs officials, and 500 adult citizens in one location would be required to apply for registration if parliament adopts Religion Law amendments.

Full state censorship of all religious literature published, distributed or photocopied in Kyrgyzstan or imported into the country, as well as a ban on sharing beliefs in public particularly from door to door could soon become law. Proposed amendments to the 2009 Religion Law are due to have their first reading in the Zhogorku Kenesh (Parliament) in the capital Bishkek tomorrow (1 June).

The amendments were prepared by the State Commission for Religious Affairs (SCRA), which has been headed since 13 February by Zaiyrbek Ergeshov.

Other provisions in the proposed amendments include a rise in the number of adult citizens living in one place required before a religious community can apply for registration from 200 to 500, as well as a requirement that even adults who travel abroad for religious education have to inform the state where they are studying.

Punishments have not yet been set out for those violating all these provisions.

In addition to the new proposed restrictions, the amendments do not propose removing any of the restrictions on exercising freedom of religion or belief in the current Law. Existing provisions which violate Kyrgyzstan's international human rights commitments include a ban on exercising freedom of religion or belief without state registration (see Forum 18's Kyrgyzstan religious freedom survey http://www.forum18.org/archive.php?article_id=2013).

Deputies told Forum 18 the amendments could be adopted before parliament's summer break, or after parliament returns in September.

Many provisions of the proposed amendments are close to provisions proposed in 2014. They were strongly criticised by the United Nations Human Rights Committee (see below).

The SCRA's amendments

The proposed amendments were prepared by the SCRA. They were approved by the government on 11 April and sent to Parliament. The text of the draft was published in April on several government websites, including those of the Justice Ministry and the SCRA.

On 16 May Parliament's International Affairs, Defence and Security Committee approved the proposed amendments.

At a hearing on 29 May, the Social Affairs, Education, Science, Culture and Health Committee also approved it. SCRA's Director Ergeshov spoke up in the Committee in support of the amendments.

In a demonstration of the wide backing for the proposed new restrictions, the Committee invited to the hearing the Interior, Justice, Foreign, Education and Culture Ministers, the head of the secret police and the General Prosecutor.

Also invited were Chief Mufti Maksat Toktomushev and Russian Orthodox bishop Daniil (Kuznetsov). (The Chief Mufti gained religious education in Pakistan and the bishop in Russia.)

Muftiate representatives backed the amendments, according to the parliamentary website. "Everyone must adhere to their own faith," one insisted. "Cases arise when there are followers of different movements in one family, Muslims and Baptists. This leads to conflicts."

Committee member Ryskeldi Mombekov "supported the amendments in Committee and will speak up in support of them tomorrow in parliament", his assistant told Forum 18 from parliament on 31 May.

Three Committee members opposed the amendments, Committee member Yevgeniya Strokova told Forum 18. One of them, Tazabek Ikramov, described the draft as "unfinished" and called on it to be sent back for further work, according to the parliamentary website.

The proposed amendments have been included in Parliament's agenda for a first reading on 1 June, according to the parliamentary website. The draft will require three readings in parliament before being adopted. It would then be sent to the President to be signed into law.

How soon?

Many previous proposed laws or amendments about religion have failed to be adopted or have been approved by Parliament but not signed into law. Many observers therefore remain unsure whether these amendments will be adopted and, if so, when.

Religious studies expert Galina Kolodzinskaya acknowledges that deputies could adopt the amendments before Parliament's summer break at the end of June, particularly as she believes they have strong political support from leading state figures and agencies.

"If there is no unified voice from civil society and religious communities, the amendments might move through parliament quickly," Kolodzinskaya told Forum 18 from Bishkek on 31 May. "Sadly, religious communities are fragmented and are unlikely to work together on this."

"But it's quite possible they will be postponed until after the presidential elections now scheduled for 15 October," Kolodzinskaya added. "If that is the case, all will depend on what attitude the new president will take, as religious policy is in the hands of the president."

Parliamentary deputy and Social Affairs, Education, Science, Culture and Health Committee member Natalya Nikitenko, who has concerns about some provisions in the draft amendments, says that ten days should separate the three readings at minimum. "But the initiators could speed up the adoption of the amendments," she told Forum 18 from Bishkek on 31 May.

Nikitenko hopes consideration of the draft will not be rushed. "There must be time to consider this properly, hopefully in the autumn after parliament has had a proper chance to listen to people's views in public hearings."

Proposed new restrictions: religious censorship

A proposed amendment to Religion Law Article 22 would introduce full state censorship of all religious literature produced, copied or distributed in Kyrgyzstan or imported into the country. Only registered religious organisations are identified as being allowed religious literature and only "commensurate with their needs" (which are undefined).

Individuals would be allowed to acquire only "individual copies" of religious books and materials and only "in line with procedures established by the government".

All religious literature in print or digital form and other materials would be subject to compulsory prior state censorship by the SCRA. The amendments specifically ban the printing or publication of any works without its express permission.

SCRA Deputy Director Zakir Chotayev denied that this would represent censorship. "It is the same as in the current Law," he claimed to Forum 18 from Bishkek on 31 May. However, while the current Law allows the SCRA to censor religious literature it does not mandate it.

Parliamentary deputy and Social Affairs, Education, Science, Culture and Health Committee member Strokova supported the religious censorship. "I'm not against freedom," she claimed to Forum 18. "But there must be limits."

But fellow Parliamentary deputy and Social Affairs, Education, Science, Culture and Health Committee member Nikitenko warned that the proposed state religious censorship would increase the powers of the SCRA. "There is no control over what the SCRA does," she complained to Forum 18. "It's not a transparent organisation."

Proposed new restrictions: ban on sharing faith

A proposed amendment to Religion Law Article 5 widens the ban on sharing faith. "Illegitimate proselytism, going round flats or homes with the aim of spreading religious views is banned, as is any illegal missionary activity. Those guilty of violating this provision bear responsibility under the Code of Administrative Offences."

A proposed amendment to Religion Law Article 3 defines "illegitimate proselytism" as "actions directed at attracting to one's own faith followers of other faiths by means of psychological and physical pressure, threats and violence".

The current Article 5 bans only "insistent actions" aimed at sharing faith, though it does ban "illegal missionary activity".

Parliamentary deputy and Social Affairs, Education, Science, Culture and Health Committee member Strokova defended this restriction. She complained that "religiously illiterate people" share their faith and argued that this has to be stopped.

"Anyone could say they are doing this, but there's no guarantee they're professing the faith that they should profess," she told Forum 18. "You don't allow unqualified people to talk about medicine the same goes for religion. We need to prevent spiritual violence." Asked whether adults are incapable of making up their own mind about any views they hear on religion, she responded: "You're deliberately twisting my words."

Proposed new restrictions: Further registration obstruction

Religious communities which want to gain state registration will find it even harder if the amendments are adopted. A proposed amendment to Religion Law Article 8 would require not 200 adult citizens as at present but 500 to apply to register a religious community. The amendment also implies that these 500 adult citizens must live in one region of the country.

SCRA Deputy Director Chotayev insisted to Forum 18 that the suggestion for 500 adult citizen members in one location came from a "public consultation". He declined to say who had proposed this or why it had been included.

Parliamentary deputy and Social Affairs, Education, Science, Culture and Health Committee member Nikitenko told Forum 18 she sees no need for the number of required members to be increased. She fears this could harm "law-abiding religious communities", including smaller communities such as of Jews or Buddhists. Fellow deputy Strokova told Forum 18 of her similar concerns.

However, another proposed amendment to Article 8 would allow the creation of a centralised religious organisation to religious organisations from a minimum of seven of the country's nine regions. Under the current Law, organisations have to be present and registered in all nine regions before they can apply for a centralised religious organisation.

The proposed amendments at least in theory remove one of the obstacles for local communities to apply for formal registration (known in Russian as "uchetnaya registratsia"). Previously this required local keneshes (councils) to approve such applications, but the Constitutional Chamber of the Supreme Court ruled in September 2014 that this was illegal. However, officials have so far ignored this ruling and many local communities struggle to get such registration (see F18News 11 November 2016 http://www.forum18.org/archive.php?article_id=2230).

Proposed new restrictions: State notification to study religion abroad

A proposed amendment to Religion Law Article 6 requires anyone wishing to study in a foreign religious educational establishment to notify the SCRA of where they intend to study. The amendments do not say whether the SCRA is empowered to withhold permission for an individual to study their faith abroad.

Another proposed amendment to Article 6 would ban private teaching of religion. The current Law bans the private teaching of "religious studies".

Proposed new restrictions: SCRA's warning, liquidation powers

A proposed amendment to Religion Law Article 26 would allow the SCRA greater powers to warn, halt or seek to liquidate religious organisations that conduct activity "contradicting the goals" of an organisation or "not specified in the statute". A warned or halted religious organisation can challenge the SCRA's decision in court. The SCRA would have to seek liquidation of an organisation through the courts.

The SCRA is empowered to conduct inspections of religious organisations to ensure that they are abiding by the law either at its own initiative, at the initiative of state agencies or in response to complaints.

UN comments ignored

The United Nations (UN) Human Rights Committee commented on the Religion Law and possible plans to amend it in March 2014 Concluding Observations (CCPR/C/KGZ/CO/2) to its consideration of Kyrgyzstan's record under the International Covenant on Civil and Political Rights (ICCPR). It noted that "the Committee is concerned about the restrictions incompatible with provisions of the Covenant [ICCPR] contained in the current law, including with respect to missionary activities, registration procedure and dissemination of religious literature" (see F18News 1 April 2014 http://www.forum18.org/archive.php?article_id=1944).

The Committee stressed that the then planned amendments to the Religion Law should "remove all restrictions incompatible with Article 18 of the Covenant, by providing for a transparent, open and fair registration process of religious organizations and eliminating distinctions among religions that may lead to discrimination" (see F18News 1 April 2014 http://www.forum18.org/archive.php?article_id=1944).

However, many provisions of the current proposed amendments are similar to those proposed in 2014.

SCRA Deputy Director Chotayev dismissed the UN's stated views. "We live in Kyrgyzstan and have our own procedures," he told Forum 18. "We're an independent state." When Forum 18 reminded him that Kyrgyzstan is a member of the UN and has acceded to the ICCPR he put the phone down.

Religious communities mostly no comment

While Muftiate leaders have been vocal in their support for the proposed restrictions, leaders of most other faiths have remained silent. Forum 18 could find no leaders of other faiths prepared to express their views publicly.

Parliamentary deputy and Social Affairs, Education, Science, Culture and Health Committee member Nikitenko said she had seen no comments from other communities. "Our Committee was not given any comments," she told Forum 18.

Nikitenko acknowledged that many communities are afraid to come forward with comments. "There is fear among the population, which is a limit on freedom of speech. But parliament must hear the voice of the people that's why we are calling for public hearings in parliament on the proposed amendments."

Privately, a number expressed concerns over at least parts of the draft. One spoke of the "onerous registration requirements which make registration for minority religions virtually impossible", adding that the "total ban" on sharing faith is also a concern.

"After the SCRA published the draft in April, most religious leaders preferred not to lodge official comments," a religious activist told Forum 18 from Bishkek. "This was because of the negative response last time around, when their comments were used to make the draft even harsher. In effect they were revealing their Achilles heel." (END)

For more background information see Forum 18's Kyrgyzstan religious freedom survey at http://www.forum18.org/archive.php?article_id=2013.

More reports on freedom of thought, conscience and belief in Kyrgyzstan can be found at http://www.forum18.org/Archive.php?query=&religion=all&country=30.

A compilation of Organisation for Security and Co-operation in Europe (OSCE) freedom of religion or belief commitments can be found at http://www.forum18.org/Archive.php?article_id=1351.

A printer-friendly map of Kyrgyzstan is available at http://nationalgeographic.org/education/mapping/outline-map/?map=Kyrgyzstan.

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KYRGYZSTAN: Religious censorship, sharing faiths ban? - Forum 18

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Censorship Won’t Help – The Weekly Standard

Posted: at 10:11 pm

The impulse to do something after a horrific event is universal, and perhaps even more pronounced in politicians than typical civilians. And so, in the wake of the horrific murder of two commuters on a Portland, Oregon, light rail over the weekend, it's not entirely surprising to see that city's mayor attempt an ill-conceived attack on free speech as a palliative.

Jeremy Joseph Christian, who allegedly murdered two people who were attempting to protect two young women that he was harassing on the crowded train, is a well-known white supremacist. Christian also stabbed a third man, who survived the attack.

Christian happens to have also attended a Portland "alt-right" rally in April; the organizer of said rally, Joey Gibson, claims he asked Christian, who was screaming obscenities, to leave the demonstration.

Gibson has another march planned for Portland on June 4, this one to purportedly "bring back strength and courage to those who believe in freedom." The rally will take place on federal grounds in downtown Portland; the federal government has already approved permitting for it.

Now, Portland mayor Ted Wheeler is demanding that the feds revoke their approval: "Our city is in mourning," the mayor said, "our community's anger is real, and the timing and subject of these events can only exacerbate an already difficult situation I am calling on every elected leader in Oregon, every legal agency, every level of law enforcement to stand with me in preventing another tragedy."

There's a bit of rhetorical sleight-of-hand here; why would banning the rally prevent another terrible murder? And the message is alarming: The mayor is suggesting that certain viewpoints effectively be censored. Oregon's ACLU chapter recognizes this danger, releasing a statement shortly after Wheeler's demands were made public. "The government cannot revoke or deny a permit based on the viewpoint of the demonstrators," the ACLU said, ""It may be tempting to shut down speech we disagree with, but once we allow the government to decide what we can say, see, or hear, or who we can gather with, history shows us that the most marginalized will be disproportionately censored and punished for unpopular speech."

Again, it appears that Mayor Wheeler wishes to do somethinganythingto relieve the city of its trauma. That's an understandable urge. But rather than suppress speech, the mayorand any WEEKLY STANDARD readerscould channel their impulses in more productive directions, by, for example, donating to the GoFundMe page of the man who was attacked on the train and survived.

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Censorship Won't Help - The Weekly Standard

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Our Opinion: Rallies distasteful, but so is censorship – Portland Tribune

Posted: at 10:11 pm

A 'free speech' gathering deserves a place, even if the mayor and others disagree with the group hosting Saturday's event.

Having the right to do something doesn't mean it's right to do it.

That's why we are joining Portland Mayor Ted Wheeler in asking the organizers of two upcoming public demonstrations to put their plans on hold.

The first, slated for Sunday, June 4, is billed as a Trump Free Speech Rally aimed at "exercising free speech" in "one of the most liberal areas on the West Coast." The second, more-disturbing, event is a March Against Sharia on Saturday, June 10.

Both events were planned before the sickening attack last Friday in which two men on a MAX train were killed after coming to the aid of two young women, one of whom wore a Muslim hijab, who was being verbally attacked by Jeremy Joseph Christian.

Alt-right organizers for the June 4 pro-Trump rally have tried to distance themselves from Christian, though he attended their previous "free-speech" rally earlier this spring. But any event supporting our president is ill-timed, given his past anti-Muslim statements and the three days it took him to issue a tepid condemnation of last week's fatal attack.

The June 10 event is one of 22 nationwide being organized by ACT for America, which cloaks anti-Muslim sentiments in a purported concern about Muslim women's rights. Even if the group was truly interested in drawing a distinction between Muslims who twist a part of Islamic tradition to justify violence and the vast majority of the peaceful practitioners of that faith, doing so would be nearly impossible in Portland's highly charged political climate right now.

There's nothing organizers can do to unlink the planned public events to Christian's actions, so for the good of the community as well as their own political messages they should call off the events.

If, however, they choose to go forward, the city must ensure everyone's safety without standing in the way of constitutionally protected speech.

That's why we were troubled by Wheeler's announcement on Monday that he'd asked the federal government to revoke the permit for the June 4 event and deny a permit for the June 10 event. (Both events are planned for the federally owned Terry Schrunk Plaza downtown.)

We understand his motivation, but believe he's on shaky constitutional grounds.

Yes, the murders on the MAX were horrific, particularly because the men killed were defending two young women from ugly, bigoted verbal assault.

But that doesn't justify using political influence to try and deny permits for people to express their opinions, even unpopular opinions, without proof that doing so poses an imminent threat of harm. And, despite violence at past events put on by the organizers of the June 4 rally, Wheeler did not on Monday offer any evidence that public safety was an issue.

Wheeler has every right to ask organizers of the permitted marches to reschedule them and we strongly concur with his request.

But if they don't, absent any proof of threat, they must be allowed to continue and any hateful rhetoric espoused should be matched and overmatched with a peaceful, clear, response that Portland will not stand for bigotry (or censorship).

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Our Opinion: Rallies distasteful, but so is censorship - Portland Tribune

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Iran lifts more than decade-long censorship on Kurdish novel – Rudaw – Rudaw

Posted: at 10:11 pm

ERBIL, Kurdistan Region Iranian authorities have granted a license to publish a Kurdish novel that focuses on the role of the father figure in patriarchal society after it was partially censored for years.

The Fence and the Dogs of My Father by renowned Kurdish author Sherzad Hassan was published in Kurdish in the early 1990s.

It was then translated into Farsi.

I translated the novel into Farsi in 1998. But the Iranian censorship body censored more than 15 pages and then gave permission for the novel to be printed. I didnt accept this decision. Mariwan Halabjatyi, who is based in the capital Tehran, told Rudaw.

I am however happy now that the novel has been licensed to be printed without censorship. It will be reprinted, he added.

The novel centers on the father figure in a patriarchal society. A man married to several women controls every aspect of his sons and daughters lives. It begins with the eldest son talking about how he murdered his father, believing that after his death everything will be alright.

Sherzad Hassan is one of the rare Kurdish novelists. He is one of those writers who saved Kurdish literature from repetition and similarity. He is a writer who reinvigorated the Kurdish story, Halabjayi said of the Kurdish author whose novel had has been published with partial censorship.

Sherzad Hassan was born in 1952 in Erbil. He completed English language and literature in 1975 at Baghdad University. He has authored 10 books.

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Iran lifts more than decade-long censorship on Kurdish novel - Rudaw - Rudaw

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