Controlling anxiety is a key part of managing my health with CF – Cystic Fibrosis News Today

At 31, I still love basketball, and Ive been a New York Knicks fan for 25 years.

For the first 21 years of my fandom, the franchise was a model of instability and getting in its own way. I try to approach my health in the exact opposite manner, which is to say that I do so with similar determination and stability that the Knicks have had for the last four years.

As an adult with cystic fibrosis (CF), I find that maintaining stability with my health is often more of a mental battle than a physical one. Overcoming the anxiety and fear that come with living with this disease isnt easy.

In January, I was hospitalized with pneumonia for a week for the second time in three months. Having pneumonia isnt new to me, as Ive battled it at least once a year for the past three years. However, because it reared its ugly head again so quickly, Ive been on high alert for any sudden changes in my body.

Whether its coughing more one day than on the previous day or monitoring my stomach when its misbehaving (I had a sepsis infection in my digestive system in 2019), Im viscerally aware of whats going on with my health.

Deep down, I know the cough is due to my allergies acting up, and my stomach is probably reacting to something I ate.

Since I was a child, my life has been all about maintaining my health and trying to get better, while doing my best to avoid getting worse.

I wish it were easier for me to tell people about the daily stressors that CF causes me, but my loved ones already worry enough about me in addition to handling issues in their own lives. I dont want to burden them by opening up about my thoughts about whats happening with my body as I get older.

Along with adopting a healthy lifestyle, I hope to participate in future clinical trials that may benefit people like me, the 10% of us who have rare, nonsense gene mutations and dont qualify for treatment with CFTR modulators. I want to be part of something that helps not only me, but also others like me. To participate in many of these studies, I must maintain a certain baseline of health, so I often obsessively monitor my weight and my cough.

I know that if excessive coughing one day extends to multiple days, it probably means I need an antibiotic to fight off a lung infection. But to participate in one of these studies, Im told I must be off antibiotics for a month ahead of time. It can be a fine line between coughing from allergies and from a lung infection, so I must ensure that Im reacting properly to the situation without letting anxiety get the best of me.

At the end of the day, its about understanding that a few extra coughs or a gassier stomach may be temporary. Its not the end of the world, and Ill be OK. I must take life on one day at a time and remember that todays issues doesnt guarantee that tomorrows will be the same.

Note:Cystic Fibrosis News Todayis strictly a news and information website about the disease. It does not provide medical advice,diagnosis, ortreatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those ofCystic Fibrosis News Todayor its parent company, BioNews, and are intended to spark discussion about issues pertaining to cystic fibrosis.

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Controlling anxiety is a key part of managing my health with CF - Cystic Fibrosis News Today