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As the world grapples with the devastation of thecoronavirus, one thing is clear: The United States simply wasnt prepared. Despite repeated warnings from infectious disease experts over the years, we lacked essential beds, equipment, and medication; public health advice was confusing, and our leadership offered no clear direction while sidelining credible health professionals and institutions.Infectious disease experts agree that its only a matter of time before the next pandemic hits, and that could be even more deadly. So how do we fix what COVID has shown was broken? In thisMother Jonesseries, were asking experts from a wide range of disciplines one question: What are the most important steps we can take to make sure were better prepared next time around?
Back in March, as epidemiologists and front-line nurses scrambled to track and treat the spread of COVID-19, health expert Timothy Caulfield was already sounding the alarm about its sinister twin: the infodemic, or the spread of misinformation about the virus. The tsunami of misleading noise flowing from this infodemic has resulted in deaths, financial loss, property damage, and heightened stigma and discrimination, he later wrote. It has also facilitated an erosion of trust in key institutions and added to the already chaotic information environment. Caulfield is a professor of law at University of Albertas School of Public Health, and the research director of its Health Law Institute, where hes launched multiple studies on the intersection of misinformation, the Internet, and public health, and hes helped craft guides on battling the spread of bad information. Hes also the host of the show A Users Guide to Cheating Death, in which he debunks popular health trends that are based on pseudoscience. And hes the author of several books, including Is Gwyneth Paltrow Wrong About Everything? I asked him about what we can do to address COVIDs parallel plague.
On how misinformation is spreading during the pandemic: Ive been following the spread of misinformation as part of my career for decades. And I havent seen anything like this before. It really is incredible. Theres misinformation spreading about every aspect of the pandemic, from its source: People are saying its a bio-weapon (not true); that its caused by 5G technology (not true). To crazy cures: The idea that you can cure it with cow urine, with bleach (not true). The idea that you can boost your immune system, which has become a huge industry.
In the early days the problem was just misinformation. Now every topic, whether it is masks, hydroxychloroquine, or physical distancing, has become a polarized issue. Thats made it more difficult to battle the misinformation. And layer on top of that, all of the controversies that have been associated with the science being done. For example, the recently retracted hydroxychloroquine study that was in The Lancet. It was a study that got a lot of play in the media, and it had an almost immediate impact on clinical trials. And then it gets retracted. Thats problematic, both because its just bad for science, but its also really, really bad for public trust.
Its incredible the degree to which social media has played a role here. Thats always been the caseweve done studies around for example, vaccination hesitancy and how vaccination misinformation is spread. But here, it really has dominated the spread of misinformation. And of course, that means thats also where we need to battle it. We have a study thats out for peer review right now, where we looked at over 200 websites, pretending we are someone searching, on Google or Bing or whatever, immune boosting. On 85 percent of those websites, immune-boosting is portrayed as if its an effective way to fight COVID-19. When the whole concept of immune boosting is scientifically questionable, its really grim when you see those kinds of numbers. And only 10 percent of the websites had any kind of critical critique of immune boosting at all. On Instagram, its pictures, its images, its a lot of influencers with lifestyle brands. And theres very little room for scientifically nuanced portrayal. So things are presented in the way as if efficacy is taken for granted. I personally looked at hundreds of postings about immune boosting, and I didnt see a single, scientifically accurate portrayal of the concept.
And so were looking at all those those generators of misinformation. And then were also working with other researchers doing empirical research on how people respond to that misinformation, and why people spread misinformation. And then, of course, what we want to do is develop some strategies. And weve already done some of that and provided recommendations.
On the individual power to stop bad information from spreading: Its one of those one of those social problems that is going to require us to come at it from every angle, right? Were going to need governments to take action. Were going to need regulators like the FDA and the FTC to step up and do more. Were going to need health professional organizations to make sure their members are not spreading misinformation. Were going to need stronger truth in our advertising laws to make sure that people arent leveraging the fear of the pandemic to sell therapies. Were also going to have toand this is a big onefigure out ways to get the social media platforms to take action.
But perhaps the most important thing, and evidence backs this up: We need individuals to take action. Theres really interesting research that suggests the spread of misinformation is largely a bottom-up phenomenon. These are people sharing this information on Facebook and Twitter. On Instagram. We have to develop strategies and encourage people not to do that. If you can just nudge people to think about accuracy, to embrace accuracy, before they share, we can have an impact on the spread of misinformation. It sounds ridiculously simple. But there are a couple of studies to back that up. And then we need to counter misinformation when we see it, with good information. So if you see misinformation, respond with trusted sources of information that use nice, authentic language (I know its hard not to be snarky, Im snarky online a lot). And then use a creative communication strategy; people respond to stories, art, humor. And lastly, make sure that the general publicnot the hardcore denieris the audience. Youre never going to change the minds of those hardcore deniers. Always aim for the general public.
On how science literacy is key to preventing pandemics, and in fostering trust: I think its something that should be taught as early asand I know that sounds ridiculousbut as early as kindergarten, and it should be taught throughout middle school and through high school and all the way through university regardless discipline. It allows people to be more critical consumers of the news, more critical consumers of social media. And the other important aspect is, teaching science literacy also allows people to understand the scientific process better. It allows people to understand that science is not a list of facts. You know, science is not a person. Science is not an institution. Science is not an industry. Science is a process. It evolves, and public health officials do their best with the evolving science to make a decision. And Im hopeful that if more people understood how science operates, they might be more forgiving of how science policy is made. And more critical of what theyre seeing on social media, in the news media, and in popular culture more broadly.
Having said all that, I think its important to recognize that the other thing we want to do with misinformation is listen and learn, you know, why are people being attracted to misinformation? What are their concerns? Its not just trying to get people to be more scientifically literate, its also about trying to understand whats attracting people to this information. Part of that is a breakdown in trust. I get a lot of hate mail. And regardless of the topic, whether its homeopathy, GMOs, alternative medicine, COVID, its almost always the same. They start with telling me what an idiot I am, probably a few swear words in there, but the very next paragraph is about trust. I cant trust the science. I cant trust the system. So I think that understanding what it takes to be a trustworthy institution; creating trustworthy science; and communicating in a trustworthy manner, is going to be incredibly important. I hope thats one of the lessons we get from this current crisis.
The United States is in a really tough spot, because in many countries, Canada included, the citizens do have a higher level of trust in their government, in their health care system, and in their public health authority. That does make it easier in a public health crisis. There are institutions, including the pharmaceutical industry, including the biomedical research world, that have had bad actors and that have created legitimate situations that people can point to and legitimately say, there are reasons I shouldnt trust you. And so I think we need to remember that when were trying to fight misinformation.
And I think that we need to make sure that the scientific house is in order. Weve seen science has been rushed. Recently weve seen important science retracted in prominent journals. Without good science were never going to win the fight against misinformation.
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We Can't Prevent Another Pandemic Without Stopping the Infodemic - Mother Jones
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