Pleural mesothelioma isnt an issue for Tim Crisler anymore.
Aggressive surgery that removed a lung and major parts of his diaphragm 15 years ago eliminated the cancer that hasnt returned.
His problem is the residual pain that never subsides and the growing unavailability of the pain medication that once held it in check, allowing him to thrive as a shining, post-surgery success story.
Those days have ended.
Crisler, 61, still lives in Kennesaw, Georgia, but his Harley Davidson Wide Glide motorcycle he rode so defiantly across the country five years ago just sits in the carport collecting pollen and dust.
The roar is no more. The trips to party in Key West, Florida and every place in between dont happen anymore.
Just five minutes on the bike leaves him wincing in pain.
I have absolutely no issues with mesothelioma cancer today. That hasnt touched me in a long time, he told Asbestos.com. Im sure Ill eventually die of something else. But its Johnny law that took my bike, my life, away. The feds, or the CDC, whoever, is pressuring the doctors from providing the pain meds that allowed me to live somewhat normally.
In an effort to lower prescription drug abuse and stop unscrupulous providers, recent government regulations have reduced access to powerful narcotics.
But these stricter regulations leave Crisler and many other cancer patients with nowhere to turn.
Doctors everywhere are facing increased scrutiny over the amount and types of pain medications they prescribe, which is hurting those who need it the most.
My doctor said its like throwing the baby out with the bath water. If this continues, dark days are coming for people with chronic pain. Youre going to see more and more mesothelioma patients, dying cancer patients, not getting the pain relief they need, Crisler said. This is becoming a huge problem that people dont want to talk about.
Crisler said he was managing reasonably well for years with the drug fentanyl, a powerful synthetic opioid which is a safe, surgical anesthetic when carefully monitored.
Unfortunately, fentanyl became a popular recreational drug often mixed with heroin that caused too many overdose deaths, leading to much tighter restrictions of its use.
I understand where they are coming from. Ive seen serious drug abuse. Its hell to go through. Its not right for kids to get addicted to it, he said. But the regulations have just gone overboard today. Everyone is different. Everyone has different pain levels. Fifteen years and I never had a serious problem with it, except it cost too much.
Crisler has become an exception in more ways than one. Rarely does anyone diagnosed with pleural mesothelioma live more than five years, even with the best multidisciplinary treatment regimen.
He remains a living testament to the effectiveness of the extrapleural pneumonectomy (EPP) the most aggressive surgery a mesothelioma patient can undergo. In a 12-hour procedure at Brigham and Womens Hospital in Boston, surgeons removed one lung, the lining around his heart and lungs, and parts of his diaphragm.
They gutted me like a catfish, he said. The cancer never returned, but my pain today is a byproduct of that surgery.
Crisler also credits the power of prayer and a God-given miracle. On the eve of his surgery, family and friends held a prayer vigil in his backyard that was attended by more than 60 people.
God healed me. Im sure of that, he said. I think my faith has had a lot to do with this. When I think back over my life, this wasnt the first miracle for me.
Crisler, still a free-spirited rebel, is no stranger to living life on the edge. He has had more than one serious car wreck. He was once nearly shot in the face from point-blank range after an argument turned violent.
He admittedly drank and smoked too much in his younger days.
Crisler was chased by police as a youngster on his first bike after defiantly tearing through a nearby school yard.
I know the difference between right and wrong, but Ive always been one to flirt with the law, he said. God is keeping me around for some reason. But its not because I lived this great, honorable life. Ive raised some hell in my day.
Since his EPP in 2002, Crisler has had his share of complications.
He lived through emergency open-heart surgery a decade ago related to complications from his EPP surgery. He also has been through serious pulmonary issues with his remaining lung.
Yet he has survived and thrived, living longer than anyone thought possible, long enough to spend all his asbestos liability settlement money.
He used some of it to send his three children through college. He also used some of it to live large, traveling extensively and doing things he cant anymore because of the pain.
Tim Crisler with his daughter, Savanna.
I went from never looking at the price on a menu to never eating out now because I cant afford it, he said. The narcotics cost a fortune.
Crisler loves doting on his three grandchildren. He lives now with his 84-year-old mother in the home where he grew up.
They take care of each other.
My pain now really limits what I can do, he said. I hate not being able to ride anymore. That kills me. I dont do much. The fentanyl used to let me do things. I cant do those things anymore.
Read more:
Mesothelioma Survivor Deals with Pain 15 Years After Surgery - Asbestos.com (blog)
- Diagnosing Pleural Mesothelioma with Lung Fluid: The Battle of the Biomarkers - Surviving Mesothelioma [Last Updated On: March 24th, 2017] [Originally Added On: March 24th, 2017]
- Republican Health Care Bill Includes Asbestos Exposure Funding for Libby Residents - Mesothelioma.com [Last Updated On: March 24th, 2017] [Originally Added On: March 24th, 2017]
- Pembrolizumab shows promise in treatment of mesothelioma - Science Daily [Last Updated On: March 24th, 2017] [Originally Added On: March 24th, 2017]
- Veterans with Mesothelioma Benefit from Telephone Triage - Asbestos.com [Last Updated On: March 24th, 2017] [Originally Added On: March 24th, 2017]
- Mesothelioma Survival Rates Slowly Improving - Mesothelioma.net Blog (blog) [Last Updated On: March 24th, 2017] [Originally Added On: March 24th, 2017]
- Understanding Mesothelioma Caregiver Styles - Asbestos.com (blog) [Last Updated On: March 24th, 2017] [Originally Added On: March 24th, 2017]
- Mesothelioma Patients Turn to Cannabis - AlterNet [Last Updated On: March 24th, 2017] [Originally Added On: March 24th, 2017]
- Mesothelioma | Overview, Treatment Options and Survivor Stories [Last Updated On: March 24th, 2017] [Originally Added On: March 24th, 2017]
- Accelerated Approval Granted to Drug in Mesothelioma Research Pipeline - MesotheliomaHelp.org (blog) [Last Updated On: April 8th, 2017] [Originally Added On: April 8th, 2017]
- New Study Affirms Mesothelioma Survival Benefit with Post-Surgical IMRT, According to Surviving Mesothelioma - Benzinga [Last Updated On: April 8th, 2017] [Originally Added On: April 8th, 2017]
- The Key to Mesothelioma Treatment Success with Immunotherapy - Surviving Mesothelioma [Last Updated On: April 8th, 2017] [Originally Added On: April 8th, 2017]
- New Evidence Supports Post-Surgical IMRT for Mesothelioma Treatment - Surviving Mesothelioma [Last Updated On: April 8th, 2017] [Originally Added On: April 8th, 2017]
- Shorter Mesothelioma Survival Linked to High Platelet Count - Asbestos.com [Last Updated On: April 8th, 2017] [Originally Added On: April 8th, 2017]
- Mesothelioma Victims Center Now Appeals to All Diagnosed ... - Yahoo Finance [Last Updated On: April 8th, 2017] [Originally Added On: April 8th, 2017]
- Early research suggests first immunotherapy for mesothelioma on the horizon - Medical Xpress [Last Updated On: June 6th, 2017] [Originally Added On: June 6th, 2017]
- Bristol-Myers Squibb's Opdivo, Yervoy put the brakes on mesothelioma in phase 2 - FiercePharma [Last Updated On: June 6th, 2017] [Originally Added On: June 6th, 2017]
- Methanol from African Plants Kills Mesothelioma Cells - Asbestos.com [Last Updated On: June 6th, 2017] [Originally Added On: June 6th, 2017]
- Mesothelioma Patients to be Celebrated on National Cancer Survivor's Day - Mesothelioma.net Blog (blog) [Last Updated On: June 6th, 2017] [Originally Added On: June 6th, 2017]
- IO Strategy In Mesothelioma Finally Gets Mapped Out | Seeking Alpha - Seeking Alpha [Last Updated On: June 6th, 2017] [Originally Added On: June 6th, 2017]
- New Blood Test Could Mean Earlier Mesothelioma Diagnosis - Surviving Mesothelioma [Last Updated On: June 6th, 2017] [Originally Added On: June 6th, 2017]
- Using Viruses to Boost Mesothelioma Immunotherapy - Asbestos.com [Last Updated On: June 6th, 2017] [Originally Added On: June 6th, 2017]
- Resilience Can Help Mesothelioma Patients and Their Families ... - MesotheliomaHelp.org (blog) [Last Updated On: June 7th, 2017] [Originally Added On: June 7th, 2017]
- Janet Stanton Schnitzer Remembers Her Father's Mesothelioma Battle - Mesothelioma & Asbestos Awareness Center (blog) [Last Updated On: June 7th, 2017] [Originally Added On: June 7th, 2017]
- Treating Mesothelioma: A rare, aggressive caner - ABC2 News [Last Updated On: June 7th, 2017] [Originally Added On: June 7th, 2017]
- Asbestos and Mesothelioma Lawsuits: What to Expect | Nolo.com [Last Updated On: June 7th, 2017] [Originally Added On: June 7th, 2017]
- Mesothelioma Victims Center Now Urges a Roofer/Insulator With Mesothelioma to Call About Why It Is Necessary to ... - PR Newswire (press release) [Last Updated On: June 9th, 2017] [Originally Added On: June 9th, 2017]
- Mesothelioma Patients May Have Another Treatment Option With FDA Expanded-Use Approval of Lung Cancer Drug - MesotheliomaHelp.org (blog) [Last Updated On: June 9th, 2017] [Originally Added On: June 9th, 2017]
- A Breath Test for Mesothelioma? - Surviving Mesothelioma [Last Updated On: June 9th, 2017] [Originally Added On: June 9th, 2017]
- Mesothelioma Cancer: 12 Essential Facts - Asbestos News [Last Updated On: June 9th, 2017] [Originally Added On: June 9th, 2017]
- Mesothelioma - NHS Choices [Last Updated On: June 9th, 2017] [Originally Added On: June 9th, 2017]
- 15-year Mesothelioma Survivor Living Life By Design - Asbestos.com (blog) [Last Updated On: June 9th, 2017] [Originally Added On: June 9th, 2017]
- Mesothelioma Cancer Overview | Experienced Lawyers Here to Help [Last Updated On: June 11th, 2017] [Originally Added On: June 11th, 2017]
- Mesothelioma Victims Center Now Urges a Diagnosed Machinist to Call for Direct Access to Journeyman-Level ... - PR Newswire (press release) [Last Updated On: June 12th, 2017] [Originally Added On: June 12th, 2017]
- Honeywell Fails in Appeal Against Mesothelioma Verdict - Mesothelioma.net Blog (blog) [Last Updated On: June 12th, 2017] [Originally Added On: June 12th, 2017]
- Mesothelioma Patients Can See Improved Survival By Reporting Side Effects - MesotheliomaHelp.org (blog) [Last Updated On: June 12th, 2017] [Originally Added On: June 12th, 2017]
- What is Mesothelioma? | Surviving Mesothelioma - Surviving Mesothelioma [Last Updated On: June 13th, 2017] [Originally Added On: June 13th, 2017]
- Cases of Pleural Mesothelioma - Surviving Mesothelioma [Last Updated On: June 13th, 2017] [Originally Added On: June 13th, 2017]
- The Importance of Cancer Research in Immunotherapy - Mesothelioma.com (blog) [Last Updated On: June 14th, 2017] [Originally Added On: June 14th, 2017]
- Hopes High for Mesothelioma Immunotherapy Treatment ... - Mesothelioma.net Blog (blog) [Last Updated On: June 14th, 2017] [Originally Added On: June 14th, 2017]
- Asbestos Sprayers Face Higher Lifetime Mesothelioma Risk ... - Surviving Mesothelioma [Last Updated On: June 14th, 2017] [Originally Added On: June 14th, 2017]
- Remembering Loved Ones Lost to Mesothelioma, Looking Forward to Progress in Treatment - MesotheliomaHelp.org (blog) [Last Updated On: June 14th, 2017] [Originally Added On: June 14th, 2017]
- Chicago Public Schools Ignoring Asbestos Problem - Mesothelioma.com [Last Updated On: June 16th, 2017] [Originally Added On: June 16th, 2017]
- Length of Time Between Surgeries a Marker for Mesothelioma Survival - Surviving Mesothelioma [Last Updated On: June 16th, 2017] [Originally Added On: June 16th, 2017]
- Nivolumab and Ipillimumab Show Promise in Treating Mesothelioma Recurrence - Mesothelioma.com [Last Updated On: June 16th, 2017] [Originally Added On: June 16th, 2017]
- Mesothelioma Patients Should Heed FDA Warnings Regarding Miracle Cures - MesotheliomaHelp.org (blog) [Last Updated On: June 16th, 2017] [Originally Added On: June 16th, 2017]
- Mesothelioma Patients May Benefit from Marijuana Research - Mesothelioma.net Blog (blog) [Last Updated On: June 17th, 2017] [Originally Added On: June 17th, 2017]
- The Challenges of Research in Immunotherapy - Mesothelioma.com (blog) [Last Updated On: June 17th, 2017] [Originally Added On: June 17th, 2017]
- Despite Mesothelioma Diagnosis, Dad Loved Father's Day - Asbestos.com (blog) [Last Updated On: June 17th, 2017] [Originally Added On: June 17th, 2017]
- I Want to Keep Writing About Mesothelioma and My Family's Journey Because It Matters - MesotheliomaHelp.org (blog) [Last Updated On: June 17th, 2017] [Originally Added On: June 17th, 2017]
- Mesothelioma Clinical Trial Opens with High Expectations - Asbestos.com [Last Updated On: June 17th, 2017] [Originally Added On: June 17th, 2017]
- Cediranib May be Safe Supplement to Mesothelioma Treatment - Surviving Mesothelioma [Last Updated On: June 17th, 2017] [Originally Added On: June 17th, 2017]
- New Trial Finds VEGF-Inhibitor May Safely Boost Mesothelioma ... - Benzinga [Last Updated On: June 18th, 2017] [Originally Added On: June 18th, 2017]
- Mesothelioma Symptoms - Identify Early Warning Signs [Last Updated On: June 18th, 2017] [Originally Added On: June 18th, 2017]
- Mesothelioma Victims Center Now Urges a Diagnosed Construction Worker or Plumber to Call for Instant Access to the ... - PR Newswire (press release) [Last Updated On: June 20th, 2017] [Originally Added On: June 20th, 2017]
- Mesothelioma Treatment May Benefit From New Discovery ... - Mesothelioma.net Blog (blog) [Last Updated On: June 20th, 2017] [Originally Added On: June 20th, 2017]
- The Influence of BAP1 on Mesothelioma Survival - Surviving Mesothelioma [Last Updated On: June 20th, 2017] [Originally Added On: June 20th, 2017]
- Clinical Trial to Assess If Radiation Therapy Can Bring Effective Relief from Mesothelioma Pain - MesotheliomaHelp.org (blog) [Last Updated On: June 20th, 2017] [Originally Added On: June 20th, 2017]
- Asbestos Exposure Attorneys - Mesothelioma Lawsuits ... [Last Updated On: June 20th, 2017] [Originally Added On: June 20th, 2017]
- Can a Breath Test Diagnose Mesothelioma in the Early Stages? - Asbestos.com [Last Updated On: June 21st, 2017] [Originally Added On: June 21st, 2017]
- Mesothelioma Compensation Center Now Urges an Electric Utility Worker or Electrician with Mesothelioma to Aim High ... - PR Newswire (press release) [Last Updated On: June 21st, 2017] [Originally Added On: June 21st, 2017]
- Nurse Explains Mesothelioma Staging - MesotheliomaHelp.org (blog) [Last Updated On: June 21st, 2017] [Originally Added On: June 21st, 2017]
- 5 Questions: Treatment options exist for mesothelioma - Las Vegas Review-Journal [Last Updated On: June 21st, 2017] [Originally Added On: June 21st, 2017]
- Steve McQueen's Wife Pushes for Asbestos Ban - Mesothelioma.com [Last Updated On: June 21st, 2017] [Originally Added On: June 21st, 2017]
- Remembering Mesothelioma Victims in the UK - Mesothelioma.com (blog) [Last Updated On: June 21st, 2017] [Originally Added On: June 21st, 2017]
- Peritoneal Cancer Index: What it Means for Mesothelioma Patients - Mesothelioma & Asbestos Awareness Center (blog) [Last Updated On: June 21st, 2017] [Originally Added On: June 21st, 2017]
- Mesothelioma Risk Continues to Rise for Decades After Asbestos Exposure - Surviving Mesothelioma [Last Updated On: June 21st, 2017] [Originally Added On: June 21st, 2017]
- Nintedanib Combination Delayed Progression in Malignant Mesothelioma - Cancer Network [Last Updated On: June 22nd, 2017] [Originally Added On: June 22nd, 2017]
- Polish Study Confirms That Mesothelioma Risk Only Increases With ... - Mesothelioma.net Blog (blog) [Last Updated On: June 22nd, 2017] [Originally Added On: June 22nd, 2017]
- The Mesothelioma Victims Center Now Urges a Diagnosed Navy ... - PR Newswire (press release) [Last Updated On: June 22nd, 2017] [Originally Added On: June 22nd, 2017]
- Targeted Therapy May Soon be Primary Approach for Mesothelioma Treatment - MesotheliomaHelp.org (blog) [Last Updated On: June 23rd, 2017] [Originally Added On: June 23rd, 2017]
- Time Between Surgeries Helps Predict Mesothelioma Survival - Asbestos.com [Last Updated On: June 23rd, 2017] [Originally Added On: June 23rd, 2017]
- Testicular and Cardiac Mesothelioma - Surviving Mesothelioma [Last Updated On: June 23rd, 2017] [Originally Added On: June 23rd, 2017]
- Mesothelioma Veterans Center - Access Benefits & VA Claims [Last Updated On: June 23rd, 2017] [Originally Added On: June 23rd, 2017]
- Malignant Mesothelioma (Asbestos Cancer) > The Mesothelioma ... [Last Updated On: June 23rd, 2017] [Originally Added On: June 23rd, 2017]
- Mesothelioma Law Firm | Sokolove Law [Last Updated On: June 23rd, 2017] [Originally Added On: June 23rd, 2017]
- MicroRNAs May Be Key to Better Immunotherapy for Mesothelioma - Surviving Mesothelioma [Last Updated On: June 24th, 2017] [Originally Added On: June 24th, 2017]
- Mesothelioma Survival Rate | Factors Affecting Survivorship [Last Updated On: June 24th, 2017] [Originally Added On: June 24th, 2017]
- Scientists "Turn Off" Tumor-Protecting Protein in New Mesothelioma Study, According to Surviving Mesothelioma - Benzinga [Last Updated On: June 26th, 2017] [Originally Added On: June 26th, 2017]
- Symptoms of Mesothelioma - Critical Signs to Watch For [Last Updated On: June 26th, 2017] [Originally Added On: June 26th, 2017]
- Mesothelioma Victims Center Now Urges a Coal Miner with ... - PR Newswire (press release) [Last Updated On: June 26th, 2017] [Originally Added On: June 26th, 2017]