Video Link: https://www.youtube.com/watch?v=YtJZZIouLHg

26-04-2011 14:50 I uploaded this video to help other parents identify symptoms of this rare disease. Many health professionals are not aware of this disease, so it is very often misdiagnosed. This Video shows the Opsoclonus. My Daughter was diagnosed with OMS in Feb 2011. People need to know about this as it very often misdiagnosed. OMS is very rare affecting 1 in 10 million and is associated with a cancer called Neuroblastoma. Her symptoms started Dec 23, 2010 and got worse Christmas day. She was very unbalanced and just could not walk straight. We went to our local hospital were multiple tests were done. Everything came back fine except and MRI showed she had a sinus infection. We were sent home with antibiotics and told that her symptoms were being caused by a virus and would clear up on it's own. Weeks went by and she only got worse, Her speech was slurred and her eyes were moving involuntarily. She forgot about trying to walk and started to crawl. Then it got to the point where she couldn't even crawl without hitting her head on the floor. She didn't even want to try anymore. All she wanted to do was lay in front of the TV and watch her favorite shows. We were told by her pediatrician and eye dr. to go to the emergency at Children's Hospital of WI where she was finally diagnosed with OMS. Full body MRI and MIBG scans were done to detect the neuroblastoma tumor but none where found. Thankfully. From there, we saw Dr. Pranzatelli and Elizabeth Tate in Springfield, IL. He is considered the ...

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Opsoclonus Myoclonus Ataxia - Video