With autism, no longer invisible

Jesse Wilson, 8, plays a game called FaceMaze at the autism center Joseph Sheppard co-directs at the University of Victoria.

STORY HIGHLIGHTS

Victoria, British Columbia (CNN) — Joseph Sheppard has an IQ above 130. Ask him about his life or worldview and he’ll start drawing connections to cosmology and quantum mechanics. He’ll toss around names of great intellectuals — Nietzsche, Spinoza — as if they’re as culturally relevant as Justin Bieber.

It might not be obvious that Sheppard has a hard time with small tasks that most of us take for granted — washing dishes, sending packages, filling out online forms. Or that he finds it challenging to break out of routines, or to say something appropriate at meaningful moments.

Sheppard, 42, has high-functioning autism. He found out only about six years ago, but the diagnosis explained the odd patterns of behavior and speech that he’d struggled with throughout his life. And it gave him the impetus to reinvent himself as an autism advocate.

“I was invisible until I found my inner splendor,” he told me in one of many long, philosophical, reflective e-mails last week. “My ability to interpret and alter my throughput of judgments, feelings, memories, plans, facts, perceptions, etc., and imprint them all with what I chose to be and chose to do.

“What I choose to do is change the course of the future for persons with autism, because I believe in them and I believe, given the right support and environment, they will be a strong force in repairing the world.”

Just last week, U.S. health authorities announced that autism is more common than previously thought. About 1 in 88 children in the United States have an autism spectrum disorder, according to the report. Autism spectrum disorders are developmental conditions associated with impaired social communication and repetitive behaviors or fixated interests.

iReport: What should the world know about autism?

Diagnoses have risen 78% since 2000, partly because of greater awareness, and partly for reasons entirely unknown. Most medications don’t help, and while some find improvements with intense (and expensive) behavioral therapy, there is no cure .

Continued here:
With autism, no longer invisible

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